Oh wait, I do that pretty much every post, don't I? Ah well.
Lately I have been stable. I have been on the Lyrica for around three weeks now. I feel like if I'm good about taking my meds I will be more able to keep seizures away. I hate the seizure monster! I know I probably haven't seen the last of it, but I would like to keep it away for as long as possible.
I ended up having to go back on a beta blocker, Dr. G decided on Metoprolol. I ended up having to take 50 mg because it did not stabilize with 25 mg. I am taking 50 mg for two weeks then going down to 25 mg for two weeks and down to 12.5 mg for yet another two weeks then discontinue. We will see if my heart stabilizes itself after being weaned over a longer period of time, but no one knows for sure. I am leary of being on beta blockers for a lot period of time, but obviously if I need it to stabilize my heart rate I will have to keep taking it.
The other day I received a call from the pain clinic about my neuro frequency ablation, which was finally approved. I don't have my grandma's calendar in front of me right now so I can't call them to schedule the procedure today, but I plan to do so tomorrow.
Last Thursday I had my last final for the school year. I have to say it felt good but I also will miss my former college. The people there really cared and I could tell that very early in my college experience. However, I also realize that the sooner I am a nurse and done with school the better my life will be. I need to get away from doing the heavy lifting and into some things that are more at my intellectual level. Right now I am frustrated because I know more than most nurses' aides but I can't put my knowledge to use because I don't have the degree to back it up. In just about a year I will be an LPN and in another year I will be an RN with an Associate's degree.
I still haven't heard anything about going to an IC specialist, which is frustrating. I have been working really hard on sticking to the diet as much as humanly possible. However, even when I do that I am still having lots of problems with pain and the like. I don't really know what else I can do. Dr. L was not sure what else he can do for me and wanted to refer me to a specialist at Mayo, but as I stated earlier they don't treat IC. That still really baffles me and I don't know who else I would be able to go to. There was something mentioned about the U, which may be a good option (if they even have an IC specialist). I can't lie, I am incredibly upset about this but I also know that I can't lose hope. I have to continue to try and advocate for myself in the best possible ways. All of that is easier said than done.
I still have to work so hard to get anything done and I have to do more to advocate for myself than the average person. Considering the fact that I have two incurable and chronic conditions, I have to make sure I am doing absolutely everything I can to educate all of my healthcare providers on the particulars of my disease processes. I am the one who knows the most about my conditions, unless they are an expert in them. So I need to make sure that I am educating myself on things so that I can educate others.
That's enough rambling for one day. My precious niece is lying down for a nap and should be waking up any minute. So, bye for now.
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