Ohh boyyy

This week has been interesting to say the least. It started out with my injection on Monday not going the way it was supposed to, which isn't overly surprising if you know me and my life. However, it didn't get a lot better until much later in the week. Tuesday and Wednesday brought busy days at work. Then yesterday I had a follow up appointment with the pain clinic and had some interesting things going on where weather was concerned last night. It can never be a dull moment for me in life. Oh well. Sometimes Iguess I wouldn't have it any other way. But there are times I just get frustrated.

So I have decided once and for all that I am done with Dr. P. He made me very upset on Monday and I realize now more than before that he simply is not the person I thought he was. He has changed from being a compassionate doctor who constantly advocates for his patients to a doctor who is short with his patients and does not do as much for them as he used to. I have not decided which doctor I am going with, although I do have some ideas, one I feel a little more strongly about now than before.
I need a doctor who is going to advocate for me and be there when I really need someone, especially where seizures and energy crises are concerned. Granted, I don't plan on having seizures or a crisis for a long time, but my PCP needs to be available. I also need my PCP to be knowledgeable in issues that arise with Mito. Dr. P has so far done alright with this, but I do feel that he is not doing everything he should be doing.

This week I have noticed that the medication that I am taking for Interstitial Cystitis is messing with me in that my autonomic dysfuction is worsening. I have been going from being pale to being flushed and my blood pressures and heart rates have been all over the place. In addition, I am going from being extremely hot to extremely cold. Eating issues and nausea are alright sometimes (most of the time they're not though) and awful at others. I do not know what to do anymore. I want to call to get an appointment with another doctor, but I do not know how long it will be before I can actually get into one. However I really can't keep going on when I'm feeling like this. Thank God it's spring break this next week. I really desperately need a break from life for awhile. Although I will be working on school work and getting myself organized. I honestly feel awful. My mother wants me to come and visit her this weekend but I do not think I will be doing that. I need a break from everything and I still do not feel well enough to mess around. Ugh.

My attitude sucks right now. I know that. I'm doing the best that I can.