I have felt like writing a lot more lately. I don't exactly know what has prompted this. Maybe because I feel my disease affecting my life more and more as time goes on. I'm really not sure. Today I was able to be very productive but now I am really feeling it. I also had a spell of hypoglycemia, which I have had before. I was sweating (which, as I've said before, I pretty much never sweat because I really can't sweat most of the time..), and feeling very nauseous. I feel nauseous a great deal of the time, partially because of my body's inability to tolerate decent amounts of food and also because of other parts of my disease process. However, after taking Zofran, most of the time the nausea subsides after a while. Well, it didn't subside quickly...something about this particular bout of nausea was different. My body seemed to crave something sweet, and I figured that having some life savers would probably help keep the nausea at bay. But then, when I thought about the fact that I was sweating, and had finished almost the entire container of lifesavers and had half a Sierra Mist, I thought my blood sugar could be low. I had my nurse that I was working with check my blood sugar, and it was 106. Mind you, that was after I had consumed almost an entire container of lifesavers which are pure sugar and drank half a Sierra Mist. So, I'm guessing my blood sugar must have been pretty low prior to that. Having had that much sugar, a blood sugar of 106 is pretty low. I'm figuring that was when I was coming up from that bout of hypoglycemia. Shortly after that I began to feel quite a bit better. It is not uncommon for people with Mitochondrial Disease to have bouts of hypoglycemia. In fact, it is quite common.
Today, as I said, I was able to be more productive than usual. My friend and co-worker, C, needed me to work for her from 5 AM to 1:30 PM, so I was up at 4 AM. I usually require around 10-12 hours of sleep on a normal day, so I decided to go to bed last night around 6 PM to make sure I could get at least the minimum required amount of sleep. Well, I was able to fall asleep at around that time, but ended up working around 7:30 PM. There is an infamous dog that lives across the alley from my apartment building, and it barks for hours without stopping. It turns out, this dog is known for its misbehavior and is supposed to be put to sleep because it has bit a person. But I digress. Anyway, the stupid dog for whose killing I would like to be present (OK, not really...I'm being mean...), was barking away and didn't stop until almost 10 PM. I didn't get back to sleep until 11 PM, and had to be up five hours later. Not exactly what you would call a sufficient amount of sleep for anyone, but especially me. And it's not like I was getting up to do something low-key. I was getting up to work on the nursing floor for eight hours. Ugh. So I got up this morning at 4 AM to work at 5 and somehow finally got through my shift. After my shift, I had my appointment at work with the scholarship committee. I feel like the meeting went pretty well. I definitely wasn't as well prepared for this meeting as I could have been, but still I feel that it went well and I have a decent chance at getting the scholarship. Then, after that meeting, I went grocery shopping and stocked my apartment up on items I needed, particularly food items. Getting my groceries and other various purchases up all of the stairs to my apartment was not easy, especially since it's been pretty hot and humid lately, and still was today. Somehow I ended up being able to do it. I also cleaned my apartment, especially my kitchen, bathroom, and living room and I also did my laundry. After doing all of this, I went out to dinner with one of my adopted moms, Deb and now I'm planning on winding down with some movies. My friend and neighbor, Brittany may be stopping by and watching a movie with me. So all in all, I have had a decently productive day. Now I have to conjure up some more energy so I can take a bath and get myself ready for bed. Then I will be ready for movies and bed time.
I'm hoping to get some more things in order for my neurologist appointment. I want to get my medical records in order and also put together a binder with my records in them, copies of prescriptions, and my advance directive. Also, I want to finish my advance directive in the near future. I am still debating on who I want to make my healthcare agent, but I am going to spend some time in prayer about it. Something tells me that I need to have Mama Mary and Mama Deb be my agents. I would have Mama Mary be the primary, and Mama Deb as the secondary. I still have a bit more praying to do about it, and I also need to ask them if they would be willing to do this for me. Of course, I'm sure they will have to think about it. Being someone's healthcare agent is a huge responsibility and not something anyone should take lightly. I'm hoping they will agree to this and help me through a health crisis.
My hope and prayer is that somehow, I will be able to get through the time between now and my neurology appointment as easily as possible. I'm so apprehensive about this appointment and I really need some answers. I'm asking Mom Mary to go with me to my neurologist appointment. She actually saw the episode and will be able to give Dr. R an eyewitness account, and one from an experienced nurse. Mom Mary is convinced that seizure activity was definitely involved. I need to be praying more about this. Things are so overwhelming and I'm upset about all of this. I need more answers. Please, if you read this blog, pray for me. Pray about this upcoming appointment, pray about my disease process and how I will cope. I would appreciate it beyond words.
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