I am attempting to be as positive as possible. With everything that has been going on, that's much easier said than done. I am completely overwhelmed what with the recent health issues I have been experiencing in addition to life in general. Advocating for myself in this situation is at times nothing short of exhausting. Last week, I ended up calling my PCP's clinic to figure out what was taking them so long to get me that appointment with the neurologist. Well, to make a long story short, they hadn't even attempted to contact the neurology office because they were under the impression that I did not want an appointment! I was so appalled, especially since I told Dr. P outright that I felt the latest issues I have been experiencing needed a specialist's expertise. So anyway, I attempted to clarify this with the nurse practitioner from Dr. P's office. And after telling me that she would make the call and the referral, she wanted to make sure I was prepared to hear what I had heard from the prior two neurologists. And in a way, I do realize that it's very possible that I would hear exactly what I have heard before. Regardless of this fact, I am attempting to keep up hope and stay positive and hope that this neurologist will see what is going on and give me some answers.
At times it is very difficult to remain positive and optimistic when fatigue and pain threaten my abilities to advocate for myself, care for myself, and keep life as "normal" as possible. But I have to keep hoping, keep dreaming, and attempt to keep a positive attitude despite my circumstances. This situation is not ideal, especially at 20 years old. But it is still the situation that is a part of my life. No matter what, I have to continue to persevere and work as hard as I can to do as much for myself as humanly possible.
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