Day One on Hydrocortisone...

So here's the thing. Hydrocortisone makes me nervous. For several reasons. One, it's a steroid. I may very well need it badly because of the Adrenal Insufficiency. Most like this is caused in part by the Mitochondrial disease. Mito causes a great deal of complications that are different for each individual affected. See, some people have horrible dysautnomia, which I do as well. Dysautnomia causes an horribly frustrating increase in the "fight or flight response" of the Autonomic nervous system. As a result, my blood pressure has a tendency to be elevated at these times and my pulse is higher than the normal 100-110 beats per minute. Yes, this is the closest thing I have to a resting heart rate. Makes no sense in some ways but a lot in others. I do not enjoy being medically weird. It is actually very frustrating because a doctor, even a wonderful doctor like my PCP, Dr. P can not easily just say "This is what's happening, this is the treatment, let's go." Nope. It's much more complicated than that. Mito makes me an incredibly complicated and medically fragile individual. I am thinking that on top of getting some other opinions and having doctors coordinating my care plan together (in addition to a plan for energy crises and the like). In addition, I am wondering if chiropractic, massage therapy, and physical therapy would be beneficial. My muscles are fatiguing and I am wondering if they are in the beginnnings of some slight atrophy. Atrophy is when an individual's mucsles shrink and become less and less useable. It can be quite uncomfortable and makes a person's legs and arm look like sticks. I'm definitely not to that point. However, this is getting to be more and more complicated. Life can't be simple. Especially for me. Haha.

So far the Hydrocortisone has been proven to improve some of the nausea after I eat something. This is good because I am able to get a few more calories in that I would not be able to otherwise. My medication schedule is very complicated at the moment. Here goes:
Morning (breakfast/when I wake up):
Birth control (for Ovarian cysts)
Symbicort inhaler
Vitamin C
Three pills of Hydrocortisone
Lactulose
30 Minutes before lunch:
Mitochondrial renewal kit supplement (5 capsules)
Lactulose
Vitamin C
Lunch time:
Two pills of hyrdocortisone
4 PM:
One pill of Hydrocortisone
Bed time:
Symbicort Inhaler
CoQ10
Calcium and Vitamin D
Benadryl
Lactulose
Aleve
Imipramine
Vitamin C
Melatonin liquid

Let's just say I'm pretty much a walking pharmacy at this point. And it doesn't even count the other things I need to use PRN for certain issues.

My hope and prayer is that things will work out in such a way that I can finally have my apartment. I need my own space so badly it's not even funny. Anyway, tomorrow I'm hoping I can get meds organized, begin packing for my upcoming move (HOPEFULLLY!), clean and organize my room, wash my bedding, put away my clean clothes, figure out some more budgeting. Wow. I better get to bed. And fast.